Luke's decannulation attempt

I am posting this because this because I would really appreciate knowing what other parents who have been in this situation think. It is not exactly as I remembered it. Luke does breathe, but seems unable to after his stoma is covered. I don't want to scare anyone with this. Just after the video stops the trach went right back in and his sats recovered immediately. He never got lower than 77 and that was only for a second.

The BIG day out

We're going for it. The trach is coming out tomorrow. We don't know how long it's going to stay out. It could be for only 10 minutes or less, could be an hour, could be until he goes down for his nap, could be out forever. We have no idea and neither does the ENT. But he's willing to let Luke have his shot at it. If it doesn't go well, then Candi and I have to decide whether or not he gets the LTR (laryngotracheal repair) which is where they take about one inch or so of a rib and put it in his trachea make his trachea larger. At the moment his trachea is about 50% the size of what it should be, so the doc thinks he might need one but he's also undecided on that so we have to wait to see how the trach coming out goes.
So we're a bit nervous about this, but he can only do what he can do. And if he needs the LTR then so be it. We're (obviously) hoping that he won't but getting prepared for the possibility. The repair won't be tomorrow but we'll find out one way or the other, it's scheduled for Jan 7.
So there we are, a day off work (yay, I deserve it) but it's going to be a tough day for everyone, especially Luke. Fingers crossed and anything else you want to cross will be greatly appreciated.
And yes, I'm the one taking the trach out regardless of what anyone else says.