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About Me
- Candi
- I am a stay-at-home-Mom to 3 terrific boys - 7 year-old twins, Sam & Gus, and 2 year old Luke. I am married to Rob, my best friend, who is also a wonderful father and husband. Rob and I thought having twins was a challenge before we had Luke. Luke was born with CHARGE Syndrome which causes a wide range of congenital abnormalities and life-long challenges. Luke's main challenges so far are bilateral choanal atresia, both sides of his nose are blocked with bone which led to him getting a trach, and moderate/severe hearing loss in both ears. He is also a beautiful, happy baby who adds so much joy and fun to our lives. Sam and Gus will be in 2nd grade this year and love books, Pokemon cards and their Nintendo DS games. Both boys are incredibly sweet and helpful, and Rob and I are so proud of them. Rob is Australian and I am American. He is a computer programmer and loves to read sci-fi books. Before having children, I studied Art History and worked at a museum. Now I channel my love of art into making things for my family and friends. We really appreciate the support of all our wonderful family and friends.
4 comments:
What a doll baby!!
He is so adorable!! I wish I had some advice about the aid, I have a hard time with my daughters aid.
good luck and all I can say is keep trying.
Hugs,
Crystal and Eva
cute photos!!!
as for the hearing aides...it is a struggle in the beginning but we kept trying, trying, trying and now he rarely pulls it out. Takes a lot of determination though in the beginning, I remember feeling quite hopeless!
amy and max :)
In the photo before Luke's First Tooth, I'd swear I was looking at Reu! Really lovely set of photos. Wishing you the best of luck for surgery on 17th. With love Cx
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