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About Me
- Candi
- I am a stay-at-home-Mom to 3 terrific boys - 7 year-old twins, Sam & Gus, and 2 year old Luke. I am married to Rob, my best friend, who is also a wonderful father and husband. Rob and I thought having twins was a challenge before we had Luke. Luke was born with CHARGE Syndrome which causes a wide range of congenital abnormalities and life-long challenges. Luke's main challenges so far are bilateral choanal atresia, both sides of his nose are blocked with bone which led to him getting a trach, and moderate/severe hearing loss in both ears. He is also a beautiful, happy baby who adds so much joy and fun to our lives. Sam and Gus will be in 2nd grade this year and love books, Pokemon cards and their Nintendo DS games. Both boys are incredibly sweet and helpful, and Rob and I are so proud of them. Rob is Australian and I am American. He is a computer programmer and loves to read sci-fi books. Before having children, I studied Art History and worked at a museum. Now I channel my love of art into making things for my family and friends. We really appreciate the support of all our wonderful family and friends.
6 comments:
That is a very cute picture!!
Hugs,
Crystal and Eva
Very good updates!! Thanks for the comment on Lucas's blog. Luke seems to be doing great and that is so wonderful and inspiring for us to see him sitting up; we are working on that for Lucas now... ...
As far as Lucas's CA repair, he didn't require any dilations and he has since had to trouble with that issue (knock on wood).
So sorry to hear about you all and the flu, thank goodness that Luke has stayed healthy!
Lucas has had a lot of fluid on his ears with the colds he has had lately and since they are draining now they have canceled the ABR this week. He had tubes put in at 5 weeks and they have done well for us to be able to put drops in and let them drain out when infected. Audiology wants to have him back when he is sitting up to check him in the sound both so we'll wait and see (as usual... ...)
Hope all goes well today with you all, and have a great weekend!!
Oh that is a super, super cute photo! Definitely need to enlarge and frame that one! :)
Love his beautiful red hair!
Amy and Max
ah very cte
Beautiful indeed!!! and a lovely expression
PS I see like Reu he doesn't wear a Swedish nose over the trach but I find with the nose, I have to keep taking it off anyone in order to suction!
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