In this much overdue post, I just wanted to let you know that Luke is having surgery tomorrow. It is with ENT - a choanal revision (basically a redo of his initial choanal repair). This time Dr. Hill is going to take away the back part of the septum in the hope that Luke's nose will finally stay open. Luke is going to get stints for 6 weeks again. Both times he has had them for the 6 weeks which included his birthday (Luke turns 2 on the 17th). Dr. Hill is also going to laser away the granuloma inside Luke's trachea near the trach stoma. This should allow Luke to wear his PMV and babble again. We are expecting Luke to stay in over night, but hopefully not longer. It should be fine and pretty routine, but my nerves are acting up anyway. You would think this would get easier, but I think it gets harder in some ways.
We will try to update tomorrow or Saturday at the latest about how everything went. Until then, your positive thoughts and support would help a lot! Thanks!
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2 comments:
We will be thinking of you all, and hoping everything goes smoothly. Living so far away, we can only imagine what life for guys must be like.
Every time you post about Luke's progress, it reminds us how lucky we are - William is about 6 weeks younger than Luke, but is walking, talking, sitting at the table feeding himself, and keeping his big sisters on their toes.
Just popped over knowing your surgery was on 12th(?) to say thinking of you during this time and the road to recovery with love Catherine x
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